"...But You Don't Even Look Sick!"

I found out that my heart was failing in October 2007 at 25 years old.

About me: I am 27, i live in NYC, and I am on a non-stop quest for healing.
I have a chronic illness called Scleroderma / Mixed Connective Tissue Disease. I also have a pacemaker/defibrillator implanted in my chest.

The Scleroderma has affected my heart causing it to be 70% covered in scar tissue.

The docs tell me there is no cure for Scleroderma. Yet, I am determined to cure myself.

Thanks for being in my world

savelaurensheart@gmail.com
www.savelaurensheart.com

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September 29, 2008

Update at Dr Ks

I called two weeks ago and again last week to ensure that all of my test results from that day in BK would be here in the Manhattan office to go over. It is the whole purpose of this visit: to discuss results and make a plan. Are they here ? NO The snide girl on the other end of the phone at the BK office seemed offended both times I asked her to please make sure my tests got to the Manhattan office. “Of course they will be there”. So I sit here, waiting, again, because people just don’t care enought to do their jobs. How long will I wait? I do not know but I am in no shape for this. No patience anymore. I am so dunzo. Whatever is after dunzo, that’s what I am.

3 years ago • Notes