Update on my Heart
I’ve been avoiding writing about this because that means I have to think about it.
Last information I shared about my heart was the results of my TEE, the test the docs gave me to see if I would be eligible for a trial where they fix your leaky valve with a clip. Well, I wasn’t eligible which left me in the same place as before we started the trial testing: leaky valve, “moderate to severe” mitral valve prolapse, and an enlarged left ventricle (the reports say “severely enlarged” but I don’t like that), and worst of all, no plan.
Since most of my doctors seem indifferent at this point (they aren’t telling me to go and get surgery NOW but they say I will have to eventually but I risk waiting too long), I decided to take matters into my own hands. I called a dear friend, Dr. A, a cardiologist upstate who helped me through my original turmoil and sent me off to caring hands at the Cleveland Clinic. This particular doctor is old school, excellent at what he does, I trust what he says, he doesn’t sugar coat things, and I love that. I got copies of my tests and sent them off to Dr. A. He is going to review my tests. He also asked me to send copies of my test. He is going to send a copy to a doc at Cleveland Clinic as well as seek out a doc in Toronto who is supposedly the best in the game when it comes to valve repairs these days. I like this plan that he came up with so I am excited to see what everyone has to say after they look at my tests.
The hardest part is waiting.
2 years ago • 5 notes
