"...But You Don't Even Look Sick!"

I found out that my heart was failing in October 2007 at 25 years old.

About me: I am 27, i live in NYC, and I am on a non-stop quest for healing.
I have a chronic illness called Scleroderma / Mixed Connective Tissue Disease. I also have a pacemaker/defibrillator implanted in my chest.

The Scleroderma has affected my heart causing it to be 70% covered in scar tissue.

The docs tell me there is no cure for Scleroderma. Yet, I am determined to cure myself.

Thanks for being in my world

savelaurensheart@gmail.com
www.savelaurensheart.com

Become a fan and help spread awareness www.facebook.com/savelaurensheart

March 9, 2010

Dysfunctional Relationships

I have been attempting to order DVD copies of my latest test for one week now. I have called two offices to have them help me, left voicemails at the number I was given for the Echocardiogram desk at Columbia and NOTHING. It is a seemingly impossible fete!

You must go in person to actually sign for these copies which I am aware of and ready to do BUT I wouldn’t even know where to go at this point. I have been sent in circles. Why is this so hard? Why hasn’t anyone called me back?! What is the problem?!

I am in a dysfunctional relationship with the healthcare system… I give so much of myself with little to no reciprocation yet I still call and leave messages constantly.

I need these copies because I have a plan (soon to be discussed). I am tired of waiting around. I’m doing things my way.

2 years ago • 1 note

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